Thank You to All Who Walked and Donated! We are so happy to announce we raised $145k for crucial NPC researchTHANK YOU!! We are so overwhelmed by the support for our virtual DART TO THE FINISH charity walk this last week. Thank you to all who participated! Walkers joined us from all across the country. It …
Year
Showing: 1 - 3 of 3 RESULTS
2020
NPC drug Miglustat improves swallowing in children and adolescents with Niemann-Pick type C1 disease
Wonderful scientific confirmation of the benefit for kids from our NPC community’s research efforts! Andrew has been on this medicine since 2004, and our toolbox is just starting to grow! Read the article: https://medicalxpress.com/news/2020-09-miglustat-swallowing-children-adolescents-niemann-pick.html
It’s Virtual – The 3rd DART To The Finish Charity Walk
VIRTUAL Charity 2 Mile Walk Walk Wherever is Convenient, but we’ve got a course laid out for you at Tods Point (Greenwich Point Park) in Old Greenwich, CT Virtual Walk starts Saturday September 26, 2020 to Saturday, October 3, 2020 Click Here To Register! BENEFIT FROM REFERRAL REWARDS! OUR GENEROUS SPONSORS! Platinum/Presenting Sponsor: …