Monthly Archives: February 2021

Town of Greenwich Proclaims February 26, 2021 as ‘Rare Disease Awareness Day’

DART participated in the town of Greenwich’s second annual, and this year, “virtual” rare disease awareness day. “It was truly and honor for the second year to join other families in Greenwich who are fighting to make a real difference

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DART To The Finish Charity Walk for NPC 2021 – Saturday * Sept. 25, 2021 * 8:30a

Gather your friends and family and join us for an invigorating  2.0 mile walk around beautiful Tod’s Point in Old Greenwich, help us raise much needed funds to find a cure for Niemann-Pick type C disease. No beach pass, no

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Mallinckrodt pulls out of cyclodextrin trial – NPC community will continue to fight for it.

On January 20, 2021, Mallinckrodt Pharmaceuticals called Phil Marella of DART and other NPC community leaders and advised us that they were not going to go forward with an FDA new drug application for Adrabetadex/Cyclodextrin. Of course, this is devastating

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