The fourth annual DART to the Finish charity walk benefiting Dana’s Angels Research Trust (DART) took place Saturday, September 25, 2021, in Greenwich, Connecticut, and virtually around the country. More than 325 individuals and organizations participated and helped raise more than $130,000, which will go towards supporting crucial research into better treatments, clinical trials and …
New biotech Mandos to take over Adrabetadex (Cyclodextrin) drug trial
Adrabetadex (Cyclodextrin) Clinical Trial. As many of you may know, much to the surprise of the NPC community, Mallinckrodt in January 2021 abandoned the Adrabetadex clinical trials; which Andrew Marella has been a part of for over 7 years. Much of the NPC community’s efforts since that announcement had been focused on what would come …
Town of Greenwich Proclaims February 26, 2021 as ‘Rare Disease Awareness Day’
DART participated in the town of Greenwich’s second annual, and this year, “virtual” rare disease awareness day. “It was truly and honor for the second year to join other families in Greenwich who are fighting to make a real difference in the lives of those suffering from some of the more than 7,000 rare diseases.” …