Blog Archives

Town of Greenwich Proclaims February 26, 2021 as ‘Rare Disease Awareness Day’

DART participated in the town of Greenwich’s second annual, and this year, “virtual” rare disease awareness day. “It was truly and honor for the second year to join other families in Greenwich who are fighting to make a real difference

Posted in Announcements, DART News Tagged with: , , , ,

NPC drug Miglustat improves swallowing in children and adolescents with Niemann-Pick type C1 disease

Wonderful scientific confirmation of the benefit for kids from our NPC community’s research efforts! Andrew has been on this medicine since 2004, and our toolbox is just starting to grow! Read the article: https://medicalxpress.com/news/2020-09-miglustat-swallowing-children-adolescents-niemann-pick.html  

Posted in DART News, Niemann-Pick Type C News, Research News

Holiday Shopping with DART – Finish up your Holiday Shopping parties on Dec 12 and a portion of sales benefits DART

Posted in Announcements, DART News, Upcoming DART Events