Gather your friends and family and join us for an invigorating 2.0 mile walk around beautiful Tod’s Point in Old Greenwich, help us raise much needed funds to find a cure for Niemann-Pick type C disease. No beach pass, no problem, DART has you covered. All Greenwich and CT COVID-19 guidelines will be followed for …
Mallinckrodt pulls out of cyclodextrin trial – NPC community will continue to fight for it.
On January 20, 2021, Mallinckrodt Pharmaceuticals called Phil Marella of DART and other NPC community leaders and advised us that they were not going to go forward with an FDA new drug application for Adrabetadex/Cyclodextrin. Of course, this is devastating and frightening news for the Marella family and the more than 80 children in the …
DART To The Finish 2020 Raises $145,000!
Thank You to All Who Walked and Donated! We are so happy to announce we raised $145k for crucial NPC researchTHANK YOU!! We are so overwhelmed by the support for our virtual DART TO THE FINISH charity walk this last week. Thank you to all who participated! Walkers joined us from all across the country. It …