Blog Archives

Studying Rare Diseases Can Yield Advances For All Of Us

August 11, 2019 • By Elsa Partan & Heather Goldstone • Living Lab Radio on WCAI-FM, Cape Cod, MA Listen to the entire radio interview here: It’s tough to study rare diseases. Because they affect only a small percentage of

Posted in Niemann-Pick Type C News, Research News Tagged with: , , , , , ,

Andrea and Phil Marella Interviewed In PharmaTimes – April 2018 Issue

Patient Files: Niemann-Pick type C Published in PharmaTimes magazine – April 2018 by Selina McKee After having two of their children diagnosed with NP-C, Phil and Andrea Marella set up a charity to help find a cure for this devastating neurodegenerative

Posted in DART News, Niemann-Pick Type C News

Martina McBride 2016 Gala and Benefit Concert raises over $325,000!

FRANK GIFFORD REMEMBERED CHARLES VITE OF UNIVERSITY OF PENNSYLVANIA HONORED AMAZING, ALL-ENCOMPASSING SHOW BY MARTINA McBRIDE SEE LINKS TO PHOTOS ON FACEBOOK BELOW! STAMFORD, CT. (November 12, 2016) – On Friday, November 11, 2016 stars and musicians converged at the Palace

Posted in Announcements, Benefit Concert, DART News, Niemann-Pick Type C News, Past DART Events