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Dana's Angels Research Trust (DART)

Dana's Angels Research Trust (DART)

Dana's Angels Research Trust for Niemann-Pick

Dana's Angels Research Trust (DART)

Dana's Angels Research Trust (DART)

Dana's Angels Research Trust for Niemann-Pick

  • Niemann-Pick Type C
    • Research
    • General Grant Guidelines
    • Resources
    • Links
  • Get Involved
  • About DART
    • Our Leadership
    • A Tribute to Dana
    • DART Documents
    • Contact DART
  • Past Events
  • News Blog
  • Upcoming Events
  • Press Info
  • Donate Now
Announcements Banner News Niemann-Pick Type C News Research News

Mandos Submits New Drug Application to U.S. FDA for Adrabetadex in Infantile-Onset NPC!

Announcements Banner News Niemann-Pick Type C News Research News

Adrabetadex (Cyclodextrin) receives FDA Breakthrough Therapy Designation for Individuals with Infantile-Onset NPC

Announcements Banner News DART News DART Walk/Run

2025 Annual DART to the Finish Charity Walk Raises Over $160,000

Banner News Niemann-Pick Type C News Research News

Great Data On Adrabetadex/Cyclodextrin Released By Mandos Health

Banner News Research News

Azafaros Secures €132M in Financing to advance Phase 3 clinical programs, including NPC

Banner News Niemann-Pick Type C News Research News

Zevra Therapeutics to Sell Priority-Review Voucher for $150 Million related to NPC drug approval

Announcements Banner News Niemann-Pick Type C News Research News

FDA Approves 2nd New Drug to Treat NPC

Announcements Banner News Niemann-Pick Type C News Research News

FDA Approves 1st Treatment for NPC

Banner News Niemann-Pick Type C News Research News

FDA Rare Disease Innovation Hub to Enhance and Advance Outcomes for Patients

Niemann-Pick Type C News

NPC Parents Help Get First Drug Recommendation!

A Food and Drug Administration (FDA)  advisory panel recommended Zavesca to treat NPC.  Phil Marella of DART, Cindy Parseghian of the Parseghian Foundation and Barb Vorpahl of the NNPDF spoke during the public portion of the hearing. The panel of outside medical experts voted 10-to-3 in favor of a question that asked “in light of …

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January 12, 2010January 12, 2010
Benefit Concert Past DART Events

Photos of Rob Mathes Concert

Click on any photo to see larger view.

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May 11, 2009October 9, 2012
Benefit Concert Past DART Events

Rob Mathes Band Benefit Concert

On Friday night, April 17, 2009, Grammy Award® and Emmy Award® nominated musician, record producer and musical director for the Obama Inaugural Concert and the Kennedy Center Honors, Rob Mathes brings his 14-piece full band for this special event, including Saturday Night Live’s Shawn Pelton on drums, Will Lee of the Late Show with David …

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April 17, 2009October 9, 2012

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