On December 27, 2021 the Dr. Oz Show featured two families dealing with “Baby Alzheimer’s;” one with a child with Niemann-Pick disease type A and the other with Niemann-Pick disease type C.
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Dana’s Angels Research Trust
2021 DART to the Finish Charity Walk Raises over $130,000!
The fourth annual DART to the Finish charity walk benefiting Dana’s Angels Research Trust (DART) took place Saturday, September 25, 2021, in Greenwich, Connecticut, and virtually around the country. More than 325 individuals and organizations participated and helped raise more than $130,000, which will go towards supporting crucial research into better treatments, clinical trials and …
Town of Greenwich Proclaims February 26, 2021 as ‘Rare Disease Awareness Day’
DART participated in the town of Greenwich’s second annual, and this year, “virtual” rare disease awareness day. “It was truly and honor for the second year to join other families in Greenwich who are fighting to make a real difference in the lives of those suffering from some of the more than 7,000 rare diseases.” …