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Announcements DART News DART Walk/Run Past DART Events

2021 DART to the Finish Charity Walk Raises over $130,000!

The fourth annual DART to the Finish charity walk benefiting Dana’s Angels Research Trust (DART) took place Saturday, September 25, 2021, in Greenwich, Connecticut, and virtually around the country. More than 325 individuals and organizations participated and helped raise more than $130,000, which will go towards supporting crucial research into better treatments, clinical trials and …

Niemann-Pick Type C News Research News

Mallinckrodt pulls out of cyclodextrin trial – NPC community will continue to fight for it.

On January 20, 2021, Mallinckrodt Pharmaceuticals called Phil Marella of DART and other NPC community leaders and advised us that they were not going to go forward with an FDA new drug application for Adrabetadex/Cyclodextrin. Of course, this is devastating and frightening news for the Marella family and the more than 80 children in the …