Blog Archives

Town of Greenwich Proclaims February 26, 2021 as ‘Rare Disease Awareness Day’

DART participated in the town of Greenwich’s second annual, and this year, “virtual” rare disease awareness day. “It was truly and honor for the second year to join other families in Greenwich who are fighting to make a real difference

Posted in Announcements, DART News Tagged with: , , , ,

Mallinckrodt pulls out of cyclodextrin trial – NPC community will continue to fight for it.

On January 20, 2021, Mallinckrodt Pharmaceuticals called Phil Marella of DART and other NPC community leaders and advised us that they were not going to go forward with an FDA new drug application for Adrabetadex/Cyclodextrin. Of course, this is devastating

Posted in Niemann-Pick Type C News, Research News Tagged with: ,

It’s Virtual – The 3rd DART To The Finish Charity Walk

VIRTUAL Charity 2 Mile Walk Walk Wherever is Convenient, but we’ve got a course laid out for you at Tods Point (Greenwich Point Park) in Old Greenwich, CT Virtual Walk starts Saturday September 26, 2020 to Saturday, October 3, 2020

Posted in Announcements, DART Walk/Run, Upcoming DART Events Tagged with: , , , , , , ,