DART participated in the town of Greenwich’s second annual, and this year, “virtual” rare disease awareness day. “It was truly and honor for the second year to join other families in Greenwich who are fighting to make a real difference in the lives of those suffering from some of the more than 7,000 rare diseases.” …
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DART
Mallinckrodt pulls out of cyclodextrin trial – NPC community will continue to fight for it.
On January 20, 2021, Mallinckrodt Pharmaceuticals called Phil Marella of DART and other NPC community leaders and advised us that they were not going to go forward with an FDA new drug application for Adrabetadex/Cyclodextrin. Of course, this is devastating and frightening news for the Marella family and the more than 80 children in the …
It’s Virtual – The 3rd DART To The Finish Charity Walk
VIRTUAL Charity 2 Mile Walk Walk Wherever is Convenient, but we’ve got a course laid out for you at Tods Point (Greenwich Point Park) in Old Greenwich, CT Virtual Walk starts Saturday September 26, 2020 to Saturday, October 3, 2020 Click Here To Register! BENEFIT FROM REFERRAL REWARDS! OUR GENEROUS SPONSORS! Platinum/Presenting Sponsor: …