February 25, 2015 Niemann Pick Disease type C, or NPC, is a disease most people have never heard of, affecting just one person in 150,000. Yet the disease is a devastating one. Frequently diagnosed in children in their elementary school years, sufferers usually die by the time they’re 20. The disease is sometimes referred to …
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Announcements
NIH partners with Vtesse on Cyclodextrin clinical trial!
Thank you to all of DART’s supporters. We have great news! The National Institutes of Health announced last Wednesday, while Andrew was getting his 16th monthly dose of Cyclodextrin (see photo), that the NIH has selected pharma company Vtesse to partner on the further development of treatments for NPC, starting with the continuation of the …
Kenny Loggins Gala and Concert raises $400,000+
Over $400,000 RAISED FOR MEDICAL RESEARCH AT DART GALA BENEFIT CONCERT Dr. Forbes “Denny” Porter of the NIH Honored The evening’s performances include a touching tribute to Dana Marella with Adrienne Pluta and Bailey Outerbridge singing Somewhere Over the Rainbow, accompanied by Alexander Constantine, on the keyboard. Friday, May 30, 2014 at the Palace Theatre in …