On September 24th, 2016, Global Genes®, one of the leading rare disease patient advocacy organizations in the world, recognized Dana’s Angels Research Trust along with DART’s funding collaborators in Support of Accelerated Research for Niemann-Pick type C Disease, or SOAR-NPC; the Hide and Seek Foundation, the Race for Adam Foundation, Hadley Hope Fund and Fight …
Tag
Showing: 22 - 24 of 27 RESULTS
Dana’s Angels Research Trust
Gladys Knight Gala raises $300,000 for NPC research!
On Saturday, May 30, 2015 stars and musicians converged at the Palace Theater in Stamford, Connecticut for Dana’s Angels Research Trust’s annual gala benefit concert. The evening opened with a beautiful video presenting the challenges of Julia Kain, 15 years-old, and her spiritual battle against Niemann-Pick type C disease. In a touching moment, young Julia …